My sister's cancerstory

Relax with your friends in The Den.... :satan:
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Madrigal
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Re: My sister's cancerstory

Postby Madrigal » 27 Sep 2013, 00:38

<3
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Thom
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Re: My sister's cancerstory

Postby Thom » 27 Sep 2013, 18:12

We had our scans today.
All her spreads were or gone or smaller or turned in cystes! It was wonderful news said the doctor!
And she didn't have flebitis but it was a side-effect of the chemo...
We are so so so relieved and happy.
Besides all the good news the doctor still pressured that the situation still stays severe. She even had a spread on her ovaries we didn't even know about...
but for now we are drinking champagne and enjoying the day. Who knows what tomorrow will bring but today we are very happy and enjoying the news...
we are popping a champagne now, got to go!

thank you tremendously for all the messages and support i (we) have been giving. i'm a true believer that positive energy is a key. thank you very much. you know who you are!
...And They Have Escaped The Weight Of Darkness

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Re: My sister's cancerstory

Postby Vitalina » 28 Sep 2013, 00:26

Great news before the weekend! Enjoy and more positive thoughts your way :)
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Re: My sister's cancerstory

Postby Madrigal » 28 Sep 2013, 02:36

That's great, Thom. <3 I'm elated for you guys!
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Re: My sister's cancerstory

Postby Thom » 29 Sep 2013, 22:56

This press release was released yesterday. Let's hope and pray they are close it will work for us rrrrrrreally soon!!!


Immunotherapy skin cancer treatments: A melanoma breakthrough?

AMSTERDAM (Reuters) - A new generation of drugs designed to trigger the immune system to fight cancer is offering the prospect of a "clinical cure" for some melanoma skin cancer patients who until a few years ago were more likely to be facing a swift death.

Cancer specialists gathering for a European conference at the weekend said the so-called immunotherapy drugs, a class led by Bristol-Myers Squibb's Yervoy, or ipilimumab, have transformed an area of oncology in which until recently doctors barely had time to get to know their patients.

Stephen Hodi, assistant professor of medicine at the Dana-Farber Cancer Institute in the United States, said he was cautious about using the term cure, but described recent advances as a "paradigm shift".

At the least, he said, the success of this new generation of medicines means some melanoma patients would now be living with a chronic disease, rather than facing imminent death.

"This is a really amazing time ... A few years ago we could never have imagined using the C-word, cure, in melanoma," he said. "But we are headed that way."

"Ipilimumab opened a door, and now the field is moving extremely fast," he told Reuters at the European Cancer Congress (ECC) in Amsterdam.

Yervoy, approved by regulators in 2011, was hailed as a breakthrough treatment in melanoma after it became the first drug ever to extend survival in patients with advanced forms of the melanoma, the deadliest form of skin cancer.

A type of drug known as a human monoclonal antibody, it activates the body's immune system to fight the cancer by targeting a protein receptor called Cytotoxic T-Lymphocyte Antigen 4, or CTLA-4.

On average, Yervoy added only about four months of life in pivotal trials, but around 20 percent of patients had an impressively durable response to the drug.

Hodi presented new data at the ECC from the largest and longest study of overall survival for patients treated with Yervoy which showed some of them can survive for up to 10 years.

Alexander Eggermont of the Institut Gustave Roussy Comprehensive Cancer Center in France, who specializes in the treatment of melanoma, said Hodi's results suggested some patients could be effectively cured of their cancer - a concept known as a "clinical cure" - with the drug helping the immune to keep the disease in check.

"Patients apparently can keep residual tumors under control for a long time when the immune system is properly 'reset', and the concept of 'clinical cures' becomes a reality," he said in a statement to the conference.

And with a next generation of immunotherapy drugs - designed to disable proteins called PD1 and PDL1 that prevent the immune system from spotting and attacking cancer cells - already being tested alone and in combination with Yervoy, there is "tremendous promise" in the treatment of melanoma, said Hodi.

Bristol-Myers Squibb is conducting late stage trials of its next-generation drug, nivolumab, in advanced melanoma, while rival U.S. drugmaker Merck is developing a competitor, lambrolizumab, which in early-stage trials helped shrink tumors in 38 percent of advanced melanoma patients.

Swiss drugmaker Roche's also has a leading contender - MPDL3280A - in this class.

"These (Yervoy) survival results could even double or triple with anti-PD1/PDL1 monoclonal antibodies, and metastatic melanoma could become a curable disease for perhaps more than 50 percent of patients over the coming five to 10 years," Eggermont said.



Read more: http://medcitynews.com/2013/09/immunoth ... z2gJoVpuzQ
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Re: My sister's cancerstory

Postby Thom » 09 Oct 2013, 11:41

sister has got the flu
it's always hoping she can keep the pills in....
...And They Have Escaped The Weight Of Darkness

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Re: My sister's cancerstory

Postby Thom » 17 Nov 2013, 13:37

friday November 22 we have new important scans. we'll know wether the chemo is still doin' it's job. my gut feeling is telling me it's good.

she started working again on friday. just a couple of hours in a week so she can restore her social contacts. but it's very tiring for her.

since her friend Jessica died, another friend died. She was 25, just finished her chemo and went for a holiday. she had to come back from holiday with severe pain because she had spreads everywhere. she died within 3 weeks after the spreads were diagnosed.
so my sister has now decided not to go to activities with the group (people under 30 who have cancer) anymore. i think it's a wise decision.

can i ask to you to think and send positive thoughts this friday? And pray if you believe?
thank you in advance :Angel:
...And They Have Escaped The Weight Of Darkness

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Re: My sister's cancerstory

Postby Madrigal » 17 Nov 2013, 13:59

:hug: For sure!
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Re: My sister's cancerstory

Postby Thom » 17 Nov 2013, 20:09

Thx Steph!

she also visited a cancer-dietist. but she is in doubt to do it.
=> she has to cut out sucre, fat, dairy and only biological fruit 'n vegs.

since she enjoys food very much, it's hard.
enjoy life and eat what you want or trying this hard diet with no prove if it works.
...And They Have Escaped The Weight Of Darkness

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Re: My sister's cancerstory

Postby Madrigal » 17 Nov 2013, 23:26

Yeah, macrobiotic diets are hard from what I understand. My mom's friend had to do it when she was going through her treatment for breast cancer. Then again, she's always been into healthy foods and cooking. Difficult, but very beneficial.
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Re: My sister's cancerstory

Postby Thom » 18 Nov 2013, 18:58

very hard!
but the thing is, breast cancer is treatable. Melanoma isn't as of yet. :(
...And They Have Escaped The Weight Of Darkness

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Re: My sister's cancerstory

Postby Madrigal » 19 Nov 2013, 01:22

I know. :( :hug:
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Re: My sister's cancerstory

Postby megzluvsmelc » 19 Nov 2013, 03:11

I'll send prayers all the way for your sister! :hug:
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Re: My sister's cancerstory

Postby Thom » 20 Nov 2013, 18:27

thx you guys!
...And They Have Escaped The Weight Of Darkness

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Re: My sister's cancerstory

Postby Thom » 21 Nov 2013, 21:53

CT-scan tomorrow at 10.30am. Will you think/pray for us?
...And They Have Escaped The Weight Of Darkness

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Re: My sister's cancerstory

Postby Madrigal » 21 Nov 2013, 22:47

As always! <3
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Re: My sister's cancerstory

Postby Thom » 22 Nov 2013, 18:40

scanners were super!
one tumor has dissappeared.
the tumors in the liver and ovaries were shrunk by 50%

yeeeeyyyyyyy!!!!
...And They Have Escaped The Weight Of Darkness

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Re: My sister's cancerstory

Postby Andres » 22 Nov 2013, 18:48

that's good!
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Re: My sister's cancerstory

Postby Madrigal » 22 Nov 2013, 20:10

How great!
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Re: My sister's cancerstory

Postby Vitalina » 27 Nov 2013, 23:37

That's great news for the holidays season! Hopefully you all stay healthy and strong! :)
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Re: My sister's cancerstory

Postby Thom » 12 Dec 2013, 23:34

Sister has to go for an extra checkup tomorrow. She has had a high bloodpressure from her chemotherapy. She got medication for that and they just have to check if her kidneys and kalium are ok.

I want to thank you guys again for ur messages here and on FB!
...And They Have Escaped The Weight Of Darkness

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Re: My sister's cancerstory

Postby Thom » 20 Dec 2013, 21:49

had the routine check up today.
bloodresults were excellent and livervalues were even better than last time!
But her bloodpressure is still too high. She has to take extra medication for that.

She mentioned she had headace for 2 weeks and the oncologist ordered an mri of the head unexpectedly.
he wanted to be sure there were no spreads
there was only a gap in 2,5 hours so it was a long long long long wait
but the results came all clear!!!!

Christmas will be sweet this year...
...And They Have Escaped The Weight Of Darkness

http://youtu.be/oxRWqirflxk
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Re: My sister's cancerstory

Postby Vitalina » 20 Dec 2013, 22:26

Really-really good news Thom! Merry Christmas and Happy New Year to you and your family! :hugs:
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Re: My sister's cancerstory

Postby Madrigal » 21 Dec 2013, 00:00

That's so fantastic, Thom. Like you said, the holidays will be wonderful this year! :hug;
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Re: My sister's cancerstory

Postby Thom » 14 Jan 2014, 19:16

Having scans again this Friday!
Sister is doing very ok! (but very very down as one can imagine)
...And They Have Escaped The Weight Of Darkness

http://youtu.be/oxRWqirflxk

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